Personal genome research : what should the participant be told?
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Personal genome research : what should the participant be told?
Trends Genet. 2010 May;26(5):199-201
Authors: McGuire AL, Lupski JR
Should the results of whole genome sequencing research be disclosed to participants, in particular when the results have uncertain or indeterminate phenotypic consequences? This controversial question is considered in light of one author's (J.L.) experience as a geneticist who recently had his own genome sequenced.
PMID: 20381895 [PubMed - indexed for MEDLINE]
