Voting with their Mice: Personal Genome Testing and the "Participatory Turn" in Disease Research.

Voting with their Mice: Personal Genome Testing and the "Participatory Turn" in Disease Research.

Account Res. 2011 May;18(3):132-47

Authors: Prainsack B

While the availability of genome tests on the internet has given rise to heated debates about the likely impact on personal genome information on test-takers, on insurance, and on healthcare systems, in this article I argue that a more tangible effect of personal genomics is that it has started to change how participation in disease research is conceived and enacted. I examine three models of research participation that personal genomics customers are encouraged to engage in. I conclude with an evaluation of the pitfalls and benefits of "crowdsourcing" genetic disease research in the context of personal genomics.

PMID: 21574070 [PubMed - in process]

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Personal Genome

Voting with their Mice: Personal Genome Testing and the "Participatory Turn" in Disease Research.

Topics

Related posts

Personalized medicine from Sciencedaily